Friday, May 29, 2009
Wednesday, May 27, 2009
The Bad: I've managed to pick up a cold somewhere :-( Right now my throat is sore and nose all stuffed and I'm tired, but luckily lungs aren't involved, and in bed now trying to keep it that way. Had an x-ray and lung functions done just to make sure (and was suppose to have the lung func done this week anyway) FEV1% is 97% and x-rays are pretty. (although the radiologist asked me if I had a boob job done??? Why in the world would she think that?? Unless she meant a reduction!!!) So anyway, I'm only going back to work on Monday (apart from an hour or 2 tomorrow to do some really important stuff). More worried about my training for the Games. No gym for a week I would guess...
The interesting: Last night's talk by the South African CF Trust was very interesting. Met some cool people and the talk was interesting, so all in all I think the future for CF'ers in SA is looking pretty good. Had a weird feeling when a guy was telling me about his girlfriend's (whom I know) cool new nebuliser called the e-flow or something. By the sound of it it's really cool, but was strange thinking that this nebuliser came out too late for me. I also couldn't help thinking if my old lungs would have been able to make it a few more years had I gotten the aggressive type of treatment they give CFers up here compared to in PE. But that's water under the bridge I suppose.
So for the next few days I shall be taking it easy, checking myself for a temperature or any sign of a cough. Please pray that that doesn't happen and I'll be back training again soon!!!
Monday, May 25, 2009
The weekend was great! VERY relaxing… On Friday eve Chris and I watched SE7EN on DVD. It’s an old movie but I’ve never seen it and have always wanted to. Was very good but rather sad. Saturday morning I went to the pharmacy to pick up some stuff, and afterwards SHOPPING!!!! Very nice :-) In the afternoon I read my book while Chris watched Formula1, and then we played Risk boardgame and watched TV for the rest of the day.
Yesterday morning we went to church and did some grocery shopping afterwards. The rest of the day was also spent playing Risk and watching TV. A great way to spend a weekend after the hectic previous weekends in PE, Cape Town, Dikhololo, Baberton…
This week is not going to be so quiet though. Tonight I’m gymming after work and then watching Greys with Jenny, Tuesday I’m attending a CF talk about the Need for Heightened awareness, which should be very interesting as there are going to be lots of CF caregivers etc. Wednesday it’s gym again. Thursday I’m going to the Transplant Group Network meeting where the speaker is going to be a woman who donated her husband’s organs… also looking forward to that a lot. So it’s going to be nice but busy and not going to see Chris :-(
Thanks for all the lovely comments on my previous post and have a great week!
Thursday, May 21, 2009
That was part of my blog post 10 days before I got the call for my transplant. How things have changed!!! The 3 biggest things. and I basically refer to all of them in this snippet, is that I now have HEALTH, LOVE and A JOB.. ie LIFE. I can run and I can’t believe how easy it is (on the lungs, not necessarily the legs, lol!). I’m in love, going out and having fun. I’ve got a challenging but satisfying job.
I do miss my friends in PE and Cape Town, but I try to see them as often as possible. And yes I still drink lots of pills, but I don’t mind it at all, because in the past 16 months I’ve coughed less than I used to cough in a single day, I had flu only once (which is less than lots of “normal” people I know), I haven’t had any rejection whatsoever, haven’t been back in hosp for a day, and I’ve gained aprox 960 hrs (40 days) in total by not nebulising (taken at roughly 2 hrs per day, although it was much more on some days). I can truly say I’m blessed beyond my wildest dreams, and I thank God for that every day. I pray that Bree, Lynn, Helen, Louis, Maryke, Jolandi, Francois, Megann, Lucille and all my other friends waiting for their lungs will also get to be this lucky.
Wednesday, May 20, 2009
This week’s been just as crazy as last week work-wise, but it should get better from here onwards. Will be spending this weekend just relaxing with Chris and maybe seeing some other friends too… looking forward to it!!!
Training for the Games has been going well I think. My time and stamina is improving, so that’s good. And I’m beating Chris at squash more often. Even lost weight in the process… added bonus!
Saturday, May 16, 2009
So glad it's weekend though. this week was seriously roughwork-wise. Had a big deadline for yesterday. Started work an hour and a half early every day and worked an hour later one day, all without taking lunch. So need some un-winding this weekend! Had training this morning, but we rained out a bit.
Hope you have a good weekend too...
P.S Tomorrow is my and Chris' 7 month anniversary, yay!
Thursday, May 14, 2009
Monday, May 11, 2009
Sorry I’ve been so quiet recently! Haven’t even loaded the Heart of Cape Town pics yet… Had a nice & busy weekend. Friday night was movies with Chris, Sat morning I had athletics training which was rather rough as it was cold and I did a lot! Afterwards I went for my flu shot… you’d think I’m used to needles, but I’m not! I’m used to having blood taken, but after I got the shot, while paying for it, I felt like passing out for a few moments! Didn’t feel like making a scene or telling anyone, so just staggered to my car and sat with my head between my legs for a few minutes, after which I felt right as rain again. I’m such a wuss…
Went to a 5 year old’s birthday party after that, and Chris and I watched a DVD called Flatliners in the eve. Rather strange medical thriller from the early 90’s with Julia Roberts about Drs killing themselves for a few mins to see what happens after death, only to be brought back to life by their colleges after the few mins were over. Pretty good storyline I guess…
Sun morning we went to church, I took my camera in as it’s giving me crap, and did some shopping. Afterwards Chris watched F1 while I read my book (first book I might finish in a few months! Very proud of myself!). Late afternoon we went to visit a guy and girl (20 and 21 year old) both waiting for transplants in hosp. I’m still the youngest person alive in South Africa who has had a lung transplant, and so badly want that to change. The other guys waiting all deserve this too. And all because a shortage of donors. IF YOU’RE NOT A DONOR YET GO TO www.odf.org.za to REGISTER NOW!!!!!!!!!!!
Going to be a busy week again followed by an even more busy weekend J Watch this space!
Thursday, May 7, 2009
Haven’t had a chance to post the pics I took at the Heart Transplant Museum in Cape Town yet! Will do so as soon as possible… Chris and I went there on a rainy day in CT, and turned out to be VERY interesting!!! I wouldn’t have had the guts to be the first surgeon OR patient to have/do the first heart transplant…