This past few days, two people that I knew in the lung-community passed away. Amber was 14 years post transplant. I've had contact with her since my first transplant, and she sent me a copy of her book when I had that transplant. She's had chronic rejection for a while, and from what I can see on Facebook, picked up an infection over the last few days and passed away. My heart breaks for her husband and little boy Noah.
Gontlafetse was a Pulomary Hypertention patient here in Joburg, who got lungs a few weeks back, but didn't make it :-( I've met her a couple of times when she's been in hospital. RIP girls...
“There are three types of lies -- lies, damn lies, and statistics.”
I'm really hoping the above quote is true. The statistics for a redo bi-lateral lung transplant are pretty terrible. In about 6 weeks' time I'll be part of the 32% of people who've made it 24 months post second transplant.
In any case, I had my best lung function EVER with these lungs today! Soooo chuffed. Been stressing because I've had a sore throat for the last 2 days that I've been doctoring. Lung volume was 120% and FEV1% was 97%. WHOOP WHOOP! Soooooo relieved. To hear your lung Dr say "There is NOTHING about your health that is a concern right now." is like a miracle. Next appointment is on my 2 year lungaversary!
My birthday was fantastic. I had a great time with friends and family, and attended a fancy event on the evening of my birthday on behalf of a fellow transplant athlete. I enjoyed the dressing up! Here's to 35 being the best year EVER!
1 comment:
You are the magic Alice........all you can do is keep on keeping on and loving every minute of it......that is all any of us can do. You are loved. Robin
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