Tuesday marked another month with the lungies and another month closer to the big 4 years! Celebrated by going to gym (well would have gone to gym anyway), but wasn't particularly impressed with my workout, felt tired! Went to gym again today and was a bit better at least.
I attended the first year-end function at my "new" work last night. Was quite nice, didn't stay till late or drink, as I was driving home, but the food was nice and everyone enjoyed themselves (judging by facebook status updates this morning some people enjoyed themselves TOOO much, LOL).
This morning I spent 3 hours at the Dept of Home affairs to get a new ID document and passport (haven't officially changed my surname to Vogt yet, had to wait until after the Sweden/UK trip because my passport was still in Vosloo, and is expiring beginning of 2012 anyway, so decided to stick with the old passport until it expired.) Was not a fun experience, but at least it's DONE now.
Tomorrow morning is the annual CF walk at the zoo, looking forward to it! Always nice seeing friends and familiar faces again, and it also reminds me to be gratefull that my stunning lungs don't have CF anymore :-) Speaking of lungs, I have a check-up again on Wednesday. Would have been on the 5th of Jan, but got a call this week saying that the Dr's rooms will be closed, so had to reschedule, and 30 Nov turns out to be exactly 3 months after my previous check-up. Hope it goes well!!!
Will be posting pics of the walk...
Saturday, November 26, 2011
Saturday, November 19, 2011
Drakensberg and week
We left the Friday just after lunch, it's a 3.5 hour drive from Joburg to get there. We stopped for a burger as well and did some "adventure driving" on some really BAD roads!!! We got there just as the sun set, so couldn't fully appreciate the views until the next morning.They were however burning the mountain (controlled fire for the vegetation and safety) which made the air a bit smokey, but provided some amazing sights. Two of our friends from Joburg also arrived about an hour later, and we had pizza for supper at the resort followed by some card-playing until midnight. On the Sat monring we were hit by the breath-taking views. We made some nice brekkie and set off for the pool. Unfortunately the wind was quite bad and the weather HOT, so we couldn't really go hiking or anything. The afternoon was spent drinking and playing Monopoly instead! We did at least manage to go for a nice little drive before setting off to a YUMMY buffet supper.
On Sunday morning the weather looked promising.. no wind! We set off to the pool again, but about 30 mins after getting the the wind started again... It wasn't quite as bad as the previous day, so we also played some mini-golf, before going for another swim. Suzanne and Marcel set off back to Joburg after lunch on the Sunday, but Chris and I spent another night as we had put in leave for the Monday. We just relaxed and watched a movie, had supper and went to bed early. We left on Monday after breakfast and still had enough of the day left to do gardening and go to the bank once back in JHB! Very relaxing weekend indeed! http://www.alpineheath.co.za/
The rest of the week flew by, and last night one of our good friends who moved to Australia a year ago stopped by for a night before going to PE and Capr Town to see family! Was so nice to see her again, really miss her :-( Need to go visit them in Aus sometime... Don't know when though!!! So much stuff planned for next year already!! Maybe 2013?
Ninette is still improving slowly but surely!!! All the drains are out, lungs looking better every day on the xrays, and vent settings going down... The poor thing is bored out of her mind in ICU, so please pray that the vent comes out soon and she can move to a much nicer room in the ward!!!
What else? Oh I want to start my xmas shopping tomorrow! Before the shops get too crazy!! In a month's time my grandparents and sister will be flying up for Christmas!!! Can't wait :-) Will be working right through Xmas, but there's a long weekend in the middle of Dec (16th is Day of Reconcilliation) and then we'll be going away again to Clarence. Real Jetsetters :-)
Next weekend is the annual CF walk, also at the zoo. Always nice to see familiar faces again! I also need to go to the Dept of Home Affairs on Sat morning EARLY, as I need a new passport and ID book, in my not-so-new-anymore surname! Exciting time of the year ahead, will be putting up the Christmas tree soon!!!
On Sunday morning the weather looked promising.. no wind! We set off to the pool again, but about 30 mins after getting the the wind started again... It wasn't quite as bad as the previous day, so we also played some mini-golf, before going for another swim. Suzanne and Marcel set off back to Joburg after lunch on the Sunday, but Chris and I spent another night as we had put in leave for the Monday. We just relaxed and watched a movie, had supper and went to bed early. We left on Monday after breakfast and still had enough of the day left to do gardening and go to the bank once back in JHB! Very relaxing weekend indeed! http://www.alpineheath.co.za/
The rest of the week flew by, and last night one of our good friends who moved to Australia a year ago stopped by for a night before going to PE and Capr Town to see family! Was so nice to see her again, really miss her :-( Need to go visit them in Aus sometime... Don't know when though!!! So much stuff planned for next year already!! Maybe 2013?
Ninette is still improving slowly but surely!!! All the drains are out, lungs looking better every day on the xrays, and vent settings going down... The poor thing is bored out of her mind in ICU, so please pray that the vent comes out soon and she can move to a much nicer room in the ward!!!
What else? Oh I want to start my xmas shopping tomorrow! Before the shops get too crazy!! In a month's time my grandparents and sister will be flying up for Christmas!!! Can't wait :-) Will be working right through Xmas, but there's a long weekend in the middle of Dec (16th is Day of Reconcilliation) and then we'll be going away again to Clarence. Real Jetsetters :-)
Next weekend is the annual CF walk, also at the zoo. Always nice to see familiar faces again! I also need to go to the Dept of Home Affairs on Sat morning EARLY, as I need a new passport and ID book, in my not-so-new-anymore surname! Exciting time of the year ahead, will be putting up the Christmas tree soon!!!
Tuesday, November 15, 2011
Tuesday, November 8, 2011
Weekend Report Back
Apart for the horrible weather the weekend was very nice!!! The wind was gale-force THE WHOLE TIME, couldn't go down to the beach at all... definitely not the best wedding weather :-/ Nevertheless, the wedding was beautiful (even though the poor bride had to have her hair re-done after the photo's outside!!) But the wedding was still great, Elette looked STUNNING. And so special to see my grandparents and other family too.
Was also good to see some old friends again, really miss them, although not much the city at all... it just looked so bare and dead against Joburg with all the pretty Jacaranda's flowering right now! Was also nice seeing my sister's flat, so cute!
Yesterday the week started off with a bang, so much work! Today was much better at least, got to leave normal time and go to gym again. Can feel I haven't been there in like 10 days! Had a lovely random braai this evening (just me and hubby), I made yummy salad and potato bake and he braaied (BBQ for those who still haven't caught on) some sort of lamb thing which was DELICIOUS!!!
We're going away again this weekend to the Drakensberg, never been there before, can't wait! Have put in half-day leave on Friday and a whole day on Monday.
Was also good to see some old friends again, really miss them, although not much the city at all... it just looked so bare and dead against Joburg with all the pretty Jacaranda's flowering right now! Was also nice seeing my sister's flat, so cute!
Yesterday the week started off with a bang, so much work! Today was much better at least, got to leave normal time and go to gym again. Can feel I haven't been there in like 10 days! Had a lovely random braai this evening (just me and hubby), I made yummy salad and potato bake and he braaied (BBQ for those who still haven't caught on) some sort of lamb thing which was DELICIOUS!!!
We're going away again this weekend to the Drakensberg, never been there before, can't wait! Have put in half-day leave on Friday and a whole day on Monday.
Tuesday, November 1, 2011
3 more sleeps!
Until I go to PE!! I almost typed "until I go back home", but PE hasn't been my home for a while now! It's already been 14 months since our house there was sold. Going to be my first time back there not going "home" to the house I grew up in :-( BUT going to see my sister's flat for the first time :-) Transplant has definitely changed my perspective on change... Even changes that make me sad (like the old house) has the positive side to it that I would not have been alive to experience this change was it not for the lungs. And the thought of completely missing out on any of those things make me MUCH sadder. Obviously possitive changes are even better!!! As is being alive to se my cousin and sister getting married!!
Ninette is still doing well, she's off the ECMO, but still has the ventilator (trachy). She's wide awake, standing, sitting in the chair, eating solid foods :-) The next big step is to get her breathing on her own!!
This week's busy at work, month end! So gym hasn't really happened yet, maybe tomorrow? Or Thursday hopefully. Friday we're flying so no gym :-) Hope you have a fabulous weekend too! I definitely will :-)
Ninette is still doing well, she's off the ECMO, but still has the ventilator (trachy). She's wide awake, standing, sitting in the chair, eating solid foods :-) The next big step is to get her breathing on her own!!
This week's busy at work, month end! So gym hasn't really happened yet, maybe tomorrow? Or Thursday hopefully. Friday we're flying so no gym :-) Hope you have a fabulous weekend too! I definitely will :-)
Saturday, October 22, 2011
45 months :-)
Ninette update: she's had a very tough week and was put on ECMO (machine that oxygenates the blood basically) to give the new lungs a rest. She's still on the ECMO but was doing a little bit better yesterday. I haven't had any updates again today. Went past the hosp this morning after the walk to visit some friends, and all I heard was that she's "hanging in there". I really pray that she survives this...
Work's been going well, gym's been great, weather is great, love summer!!! So all in all I'm a very happy camper! Our kitties are also soooo cute, and my garden looking good, although lots that I want to do still. Also have a few weekends away with Chris and friends planned in the next 6 months, including a week off for my sister's wedding :-) CAN'T WAIT!!!!
The Big Walk had an awesome turnout, more than a 1000 people! And loads who signed up as organ donors. See some pics below... Don't have much plans yet for the rest of the weekend, but sure it'll be good!
Work's been going well, gym's been great, weather is great, love summer!!! So all in all I'm a very happy camper! Our kitties are also soooo cute, and my garden looking good, although lots that I want to do still. Also have a few weekends away with Chris and friends planned in the next 6 months, including a week off for my sister's wedding :-) CAN'T WAIT!!!!
The Big Walk had an awesome turnout, more than a 1000 people! And loads who signed up as organ donors. See some pics below... Don't have much plans yet for the rest of the weekend, but sure it'll be good!
Tuesday, October 18, 2011
Monday, October 17, 2011
Ninette got lungs yesterday!!!
Good CF friend of mine Ninette got her call late Sat night, she came out of theatre just before midnight last night, and as far as I know she's stable and all's well. I REALLY pray it stays that way!!! It's only the second transplant I know of this year (there might have been another one but I don't know the recipient involved). Donor rates have really gone down :-( Please pray that she has a quick and hassle-free recovery!!!
My sister's visit last weekend was great! We bought some plants, had supper at my parents place and a braai at our place. Shopped for a dress for my mom to wear to the wedding next year (unsuccessfully :-/) All in all a very nice weekend. This past weekend one of my best friends from school, Carli was here with her fam, so got to see them on Sat, which was awesome. Yesterday I had a girls-afternoon... Chris and my friend's hubby went to the SA VS Australia cricket game, so we had lunch, went to the movies and coffee afterwards. Perfect way to spend a sunday afternoon! Got home rather late though and then didn't sleep too fantastically, I kept up waking up thinking about Ninette. Luckily her boyfriend (who also had a double lung tx http://livinglifebreathlessly.blogspot.com/2010/02/post-444-new-lungs-for-francois.html last year in Feb kept me updated!
This Saturday is the annual Organ Donor Foundation Walk at the Joburg Zoo. Always a nice event. But before then still 4 more working days!!! Going to gym tomorrow, Will try to visit Ninette (or Francois most probably) on Wednesday, gym again on Thursday. Hopefully a good weeke then, and even if it's not, it ends with payday on Friday :-D
My sister's visit last weekend was great! We bought some plants, had supper at my parents place and a braai at our place. Shopped for a dress for my mom to wear to the wedding next year (unsuccessfully :-/) All in all a very nice weekend. This past weekend one of my best friends from school, Carli was here with her fam, so got to see them on Sat, which was awesome. Yesterday I had a girls-afternoon... Chris and my friend's hubby went to the SA VS Australia cricket game, so we had lunch, went to the movies and coffee afterwards. Perfect way to spend a sunday afternoon! Got home rather late though and then didn't sleep too fantastically, I kept up waking up thinking about Ninette. Luckily her boyfriend (who also had a double lung tx http://livinglifebreathlessly.blogspot.com/2010/02/post-444-new-lungs-for-francois.html last year in Feb kept me updated!
This Saturday is the annual Organ Donor Foundation Walk at the Joburg Zoo. Always a nice event. But before then still 4 more working days!!! Going to gym tomorrow, Will try to visit Ninette (or Francois most probably) on Wednesday, gym again on Thursday. Hopefully a good weeke then, and even if it's not, it ends with payday on Friday :-D
Wednesday, October 5, 2011
October *shock* :-0
October?? Where did Sept go??? Wow this year has less than 3 months left. And in actual fact only 2... AAAHHHH!!!! In exactly a months time we'll be in Port Elizabeth for the first time since we got married there for my cousin's wedding. CAN'T WAIT!!! Will be seeing my sister's place for the first time, and will definitely have to squeeze in a walk on the beach! Also seeing some old friends again, and very importantly my gransparents, who I also haven't seen since our wedding :-)
This week is month-end at work, and think I've been doing a lot better than last month, so that's good. Things are generally getting easier with the "new" job. My unpaid leave that I had to take for our overseas trip is also done now, so my salary for Oct will be looking a bit better, YAY!
The kitties are doing awesomely, almost fully grown, if not already there. The girl froze up in the tree on Sunday evening when we had our first PROPER thunderstorm for the summer. I think all the rain and thunder completely freaked her out. I tried getting her out of the tree with some tuna, but only managed to attract the neighbour's cat, which didn't exactly help! Eventually Chris had to chase the other cat, get a ladder and poke her down with a rake! Poor thing was wet and traumatised afterwards. Oh and the grass we planted has FINALLY started to grow, hope it continues that way! Will probably have to do another batch of seeds next summer, as it's not a creeping grass and not very thick right now.
My sister is also here this weekend, will be nice to see her again, and then in November and then in December and then in Feb for her wedding :-) Good times ahead!
This week is month-end at work, and think I've been doing a lot better than last month, so that's good. Things are generally getting easier with the "new" job. My unpaid leave that I had to take for our overseas trip is also done now, so my salary for Oct will be looking a bit better, YAY!
The kitties are doing awesomely, almost fully grown, if not already there. The girl froze up in the tree on Sunday evening when we had our first PROPER thunderstorm for the summer. I think all the rain and thunder completely freaked her out. I tried getting her out of the tree with some tuna, but only managed to attract the neighbour's cat, which didn't exactly help! Eventually Chris had to chase the other cat, get a ladder and poke her down with a rake! Poor thing was wet and traumatised afterwards. Oh and the grass we planted has FINALLY started to grow, hope it continues that way! Will probably have to do another batch of seeds next summer, as it's not a creeping grass and not very thick right now.
My sister is also here this weekend, will be nice to see her again, and then in November and then in December and then in Feb for her wedding :-) Good times ahead!
Monday, September 26, 2011
Happy birthday to my hubby!
It's Chris's birthday today!!! Taking him out for supper later tonight, hope he enjoys it! Our weekend away was great, apart from the wind! Was unexpected and didn't go so well with sleeping in a tent!! Second night was better though and we slept through it. Posting some pics below. I wouldn't have been able to go there with my old lungs, as there's no electricity, everything is run off gas and batteries, and I wouldn't have been able to do my nebs. Sooooo amazing not having to be bound by things as simple as a plug-point anymore :-)
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