Sunday, November 22, 2015

Lungaversaries of Anna and Alice

It's the 22nd again! And a special one because Anna's lungs turn 5!!!! HAPPY 5 YEAR LUNGAVERSARY ANNA!!!!!! 5 years  is a big one because only 50% of patients reach the 5 year post transplant mark. So glad you've reached it and doing great!

It's my 7 year 10 months lungaversary today, 2 months short of the next big one!!!

Last week was pretty good. Had rain and LOTS OF HAIL for a change!!!!! Nice break from the heat. We had rain a few times after that as well which is awesome. Hopefully it continues. Almost looked like snow!

This weekend we went to visit friends in Secunda. Dean has always been there, but they got married in May and now Cecile has left is for Secunda too :-( We've been missing her a LOT in JHB so was very nice catching up. And nice to get away, even if it wasn't far.

Time is flying way too 3 weeks' time we will be in Cape Town!!! Soooo much to do before then. Hope I can fit everything in!!! Eeeeekkkkkkkk...

Monday, November 16, 2015

Crazy Awesome week and today's Dr check up and lung function

The rest of Robyn's visit was great. Had her experience the Miami Vice.... the best cocktail at Rocket in Parkhurst. Half Strawberry Daquiri and half Pina Colada.

On Thursday I went to Fawny after work, we chilled by the pool followed by a girls' night of pizza and a cocktail. Unfortunately it was cut short when I was an idiot and accidently swallowed my sleeping pill along with evening pills and had to cut my eve short!

Weekend included lunch with friends, Epic game of Cards Against Humanity with my work BFF Elzemike that I won (ie I'm the most horrible person at the party), Such an awesome and dodgy game! See especially relevant pic for the Americans below,,,

Today was my lung check-up day... lung function down 1% from 3 weeks ago when I got discharged (44%) to 43% FEV1% (bearing in mind I was on a higher dose steroids still when discharged). Weight up to a nice 56kg, although would still prefer 57kg. All bloods were fine, So all in all a good check-up. Next check-up 21 Jan... the eve of my 8 year lungaversary. Touch wood no more Drs for 2015!!!!


Saturday, November 7, 2015

BUSY BUSY BUSY week and weekend and Robyn!

This week was month-end and it felt like a rough one at that!!!! Bad luck for first full week back! Also managed to get to gym once at least, Was hard on muscles but lungs were handling it the same as pre-pseudomonas. So that's good! Was pretty sore and very tired for two days after that but it's part of the going-back process! Need to get there twice next week!

Robyn has been visiting us since Thursday from East London for this weekend's SATSA meetings (SA Transplant Sports Association). Been great catching up with her again, haven't seen her since April this yer in Cape Town! We met at my first National Games in 2008 (she received a kidney a month after I got my lungs) and it was her first National Games too. At our first World Games in Australia we shared a room (the most AMAING apartment.... "room" doesn't quite do it justice) and the rest in history...

WTG 2009 Australia...

WTG 2011 Sweden ...

WTG 2013 Durban...

2015 SATSA Management Committee Meeting...

Today's meeting went well, was really positive and feeling inspired again. Unfortunately I missed the 2015 WTG, but Nationals will be held in Joburg next year and we have a Mancom meeting in April, so will be seeing her in April again yay.

Friends forever!

Sunday, November 1, 2015

Hello November!!!!!

It's November!!!!! Pretty much the busiest month of the year!!! Glad to put October behind me, Hopefully no medical drama this month, only want a good lung check-up in 2 weeks' time, That will also be the last drs visit for 2015. Yay!

I had a really brilliant weekend. On Sat morning we went to the Titanic Expo that I won tickets for on Fawn's blog. It was really really interesting!!!!! Unfortunately you're not allowed to take pics inside, so I had to buy myself the book-thing that goes with the expo. This is the last week of the expo being on Jozi, so hurry your ass there if you want to see it.... and Cape Town I can recommend it! You even end off with a lovely corny Jack and Rose pose. Will add more expo related pics later...

Afterwards we had a nice lunch at a garden shop (although the heat was killer), followed bu ice-cream on Northcliff Hill. Last night a braai and some Cards Against Humanity at Brendan's house.

This morning we slept late and had breakfast with Cecile and Bianca (Cecile recently got married and left is to go live in a horrible place called Secunda... but in 3 weeks' time we will be assessing her new home and decide if she is still allowed to be a friend) Was great catching up and had most a amazing food. P.S. My appetite that has been AWOL for the last few weeks actually is BACK, Eating like a beast and packing it in while it lasts.

Have a good week. It's going to be a BUSY one here but ready for it. Month-end and going back to gym!

Friday, October 30, 2015

Happily Home

 It's GREAT to be back home!!!! Wednesday was BUSY, stocking up the house, doing laundry, slept late, just enjoyed being HOME. Thursday and today at work was also good. NOT BEING IN HOSPITAL IS GOOD!!!!

Three of my orchids started blooming, and the three kitties were angry at me initially! They were not impressed by my return at all. However when I woke up during the night on Tuesday night Peppie was lying against me :-) As he is doing again now. So I guess all is forgiven. (When I got home he literally saw, me, turned around and ran outside).

Tomorrow Chris and I are going to the Titanic Expo in Rosebank (won tickets via Fawny's blog, yay!!!!) I was pretty obsessed with it back in 8th grade when the movie came out... saw it 4 times on the big screen! So it;s bound to be super awesome and interesting. Then going to a braai at Brendan's place. He has sold his house so might be the last one there! However now it's bedtime.... intense week! Hope I manage to sleep late again tomorrow morning!

I know I've said this a few times now, but I am REALLY REALLY glad that I'm hospital free, needle free, cleaners-changing-the-bins-at-midnight free, vital-check free, waiting-for-the-dr free... feels like I've been released from prison!!!!

Tuesday, October 27, 2015

Random Milpark boredom/walking pics

Day #15 - DISCHARGE DAY!!!!!!

Finally going home this afternoon!!!! This has been my longest hospital stay ever (well exactly as long as I was in hosp for my transplant, so it's a tie!!). Definitely cannot complain, I've just always been very lucky and in other words not used to being admitted. Have had some good food for thought and been reminded to be grateful etc etc, but OVER IT NOW. TIME TO GET MY LIFE BACK!!!

Went for lung function yesterday, and it's back to where it was before I got sick, yay!!! Went back up 8% so FEV1% is a nice 44% again so back to my "stable" figures. FVC (capacity) up to 87% from 77% on admission. O2 sats were 94% yesterday compared to 88% so they are also normal again. Lung function has been stable for over the last year now (there was a dip in May but went up just before our USA trip), so hopefully this bug is killed and I will remain stable.

Lung func 14 Oct:

Lung func 26 Oct:

I will be chilling at home tomorrow, and back at work on Thursday. Cannot wait!!! Thanks so much to everyone for the love and support!!!

Saturday, October 24, 2015

Sat Night hosp musings.... Day 12

Hosp news: Wednesday four more work colleagues came to pop in during lunchtime and spoiled me with sooooooo much of my favourite snacks. Like A LOT!!!!!

Meant so much to me ��. They are lovely people!!! Looking forward to being back at work just to see them all again. The roses they sent me have also just grown more and more beautiful as well.

On Thursday my hubby's work Syspro also sent me a stunning bouquet.... My room looks like an amazing garden now.

Have also been doing a crap-load of colouring in...

And Thurs was my lungaversary....

I also got redripped, wasn't too bad and I'm handling it way better than I used to with old lungies. Also mastered the new CADD pump thingy that the hip CFers use these days, so CF street credibility has gone up.

Sis also came and did my nails... (Note how my fingers are barely clubbed anymore just by the way)

Lungs are feeling waaayyyyy better, have stopped sleeping on the O2. Trying to get in as much exercise as possible with squats, lunges and walking. Can't wait to be in the gym again. Also had bone density scan done, and Dr is happy with it, hips are normal and some parts of spine has Osteopenia, but apparently calcium and Vit D enough treatment for now.

This admission has also been a CF flashback of note.... I forgot how much the old lungs used to cough. Listening to 2 other CF ladies nebulize and cough and repeat has been humbling. Even though these lungs have had issues over the last almost 3 yrs, they are still fucking amazing. They don't make mucus, they respond to treatment, when you're sick and there IS mucus, it comes out and stays out. You're not DROWNING! Transplant is scary and hard (well I was lucky as hell but normally it's hard) but if it is a success it is AMAZING. Nothing compares to the shittiness of CF lungs. I would do it all over again in a heartbeat. 

Hoping to be discharged on Tues..... Then my live can hopefully carry on likenormal again.