Wednesday, August 20, 2014

Food Poisoning and Exercising

So yesterday I ate left-over food from Sunday that had gone off... it lead to a) discovering my Nissen Funduplication Op 2 years ago for reflux was very successful - I CAN NOT vomit!!! b) ending up in Casualty on a drip. It really is a horrible horrible feeling when your body is trying to rid itself of food you ate but it cannot. All the muscles in my upper body hurts today!!! Luckily I wasn't admitted and felt much better after some IV pain and nausea meds I could go home. Stayed home from work today and rested.

I'm also seriously preparing for the National Games now and have upped my weights at the gym and started my coaching! Party planning also going well... looking forward to it. But lots that needs to happen before then.

Biker's Day for Organ Donation

The Netcare Joburg Transplant Team are organising an amazing event that promises to be loads of fun! PLEASE SPREAD THE WORD TO ALL BIKERS!!!!

Sunday, August 17, 2014

Vote for Fawn - Big Blog Exchange

Dear blog-readers.... please vote for my fellow blogger and CF/lung tx friend Fawn's blog HERE... it's an international blog exchange program which will see her switching lives with a blogger from elsewhere in the world for a short period of time... what an awesome experience! (I have too much stuff going on in my life already at the moment so not interested in entering myself!) DO IT!!!!

Awesome weekend and Carli turns 30 today!

Had an awesome and busy weekend! But first, one of my best friends in the world Carli turns 30 today... HAPPY HAPPY Carli!!! Will be seeing her in 2 week time when she comes all the way to Joburg for MY 30th. So excited for that weekend!

Back to my weekend.... on Sat we had lunch with Fawn and some of her friends. It was GREAT and they are such cool people. Afterwards we went to my friend Brendan's house for a braai. Today we had my parents and Chrislie and Pierre over for lunch, after which Chrislie and I had a very impromptu and productive shopping trip!

Tomorrow I have my first training session with a coach from the university for shot put and discus that I will be doing at Nationals in Oct. Eeeekkkk am nervous!!!! Less than 2 months to go to the event and time is running away from me!!!!

Also saw this great endorsement for Organ Donation from Katherine Heigl, which makes me very happy! Have a good week!!!

Sunday, August 10, 2014

Spring has sprung...

Did some gardening today. Spring has started!!! Hoping everything I planted grows!!!!

Saturday, August 9, 2014

ChariTea and Wedding anniversary

It's been a busy week once again, the highlights of which was our 4 year wedding anniversary and Fawn's Charitea at which I spoke at today (which was a huge success). For our anniversary we had an amazing dinner at Pigalle in Melrose Arch, and received the most stunning flowers and champagne from Chris's mom. Some pics below...

Sunday, August 3, 2014

100km Run for CF UK

PLEASE PLEASE sponsor my aunt running 100km for CF in the UK!!!!! Click here to donate. She is so fit it borders on insanity :-)

Friday, August 1, 2014


It's the crazy happy month of August!! Let's see... Wedding Anniversary on the 7th, speaking at Fawn's Charitea on the 9th, spring starts, it's Organ Donation awareness month AND my last month of being a 20-something year old!!! So a very exciting month!!

A year ago (well on the 12th of Aug) I started photopheresis. A pretty scary time. Today I'm pretty proud to say that I completed 24 sessions of it without any catheters or ports and such permanent lines (well done veins!!!), and didn't stop working, even though the vibe that I got from facebook support groups is that working while having this is nearly impossible as it makes you sooo tired and immune supressed etc. So that's great.

Had a very medical week... Had gynae check-up that went very well... no abnormal cells (in 2009-2011 I had about 3 cauterisation and other procedures on my cervix due to abnormal cells that could become cancerous) I have known post transplant people who have died from cancer so it was a worry. However all has been good since then and last 2 pap smears were NORMAL. Dr is "chuffed". So yay!

The bone density also went well. My previous one was about 8 or 9 years ago, in PE, so they couldn't compare the results accurately, but from what I can remember it has improved as my Dr thought it would. This is due to exercise and being much more active than all those years ago and being on less steroids since transplant than I used to be on pre-transplant. I have also been on meds for bone density before but at the moment all I have been prescribed are Calcium and Vit D, plus exercise. So that's also great news.

Dentist had to replace 2 old fillings. Was the least "fun" medical visit. Still feels weird now when I bite down and might have to go back to have something adjusted if it doesn't get better. Annoying but as far as medical problems go not a biggie.

Tomorrow I'm going to the quaterly transplant network meeting, and gym. Sunday having nice lunch with special friends, Not much else planned.

Have a good weekend!!!

Tuesday, July 29, 2014

Happy birthday Chrislie!!!

My baby sister turns 27 today!!! We're getting old!!! Hoping she has an amazing year :-) And so glad I'm still here to share her (AND MY) "getting old"!

Monday, July 28, 2014

Charitea! - a must read if you're in Jozi!

My fellow CF and post lung transplant friend Fawn has started a charity event called Charitea!!! She will be raising funds for different charities of which the first is the Organ Donor Foundation. There is only 60 seats available and they are going fast.... so if interested please check out her blog for more detail. And if you cannot make it check out her blog anyways... because it's awesome.

Sunday, July 27, 2014

8 km walk done!

I survived the 8km Discovery Walk the Talk! Yay! Had to slow down with uphill but at least didn't have to stop once. It was litterally FREEZING at the start (zero degrees C) and we were dressed like eskimo's. Legs pretty sore now as it's also a long walk from the parking to the race so we did at least 10-11km. And haven't been in the gym as much as I need to! My lung function is exactly half of what it was the last time I did this walk in 2010. It was 104% back then (thanks blog!) and is 52% now. At least I COULD still do it, and hopefully I can again next year.

Last night we celebrated my sister's 27th birthday by having supper at Grand Central in Melrose arch. One of my favourite restaurants and it didn't disappoint. So a pretty good weekend.

Thursday, July 24, 2014

Pretty good lungaversary check-up

Tuesday's check-up on my 6 year 6 months lungaversary went well. Lungfunction was 52% FEV1 and 95% FVC (capacity). So all in all a 1% drop in 2 months... not bad. Rest was all good. Best part was that my friend Fawn was also there for check-up which made the hours and hours of waiting (hopefully Dr doesn't read this LOL) a lot better. Seems thus far that the photopheresis worked ... if lungs stay stable like they seem to be. Next check-up is 28 Aug... 3 days before I turn 30! Can't believe I'm facing my last month as a 20-something year old. Amazing and a bit surreal.

This weekend we celebrate my little sister's 27th birthday (on 29th of Jul) and I'm also doing a 8km Discover Walk the Talk.... My lungs will probably hate the uphill... but will just slow down for those. Also hoping to train for the Nationals with the coach from next week (will be doing shot-put and discus) as it's getting closer!

Have a good weekend.