Wednesday, June 22, 2016

Winter Solstice and Lungaversary


Yesterday marked the shortest day and longest night for our hemisphere.... Found some amazing breathtaking pics on social media yesterday.... see some more here. Apparently it was special this year because it coincided with "Strawberry Moon ". Anyways, I don't know anything about astronomy, but it's beautiful.

Today is the 22nd again..... lungaversary! Always a special day and the feeling of happiness never gets old.


Been a rather chilled week but going to be picking up from here... on Monday I just did some grocery shopping, Tuesday I had bio, and drove around for a bit of Love Life; Gift Life admin that had to be done. Today I had lunch with Andrew (had the most AMAZING Musselpot). Yay for self-employed friends!!!! The highlight of my day though was seeing my friend who recently had a single lung transplant on Skype this morning, looking GREAT, being pink, not wearing oxygen anymore! Makes my heart so happy and just reaffirms what we're trying to achieve with Love Life; Gift Life.




This weekend is going to be FILLED with family, as my cousin Elette and her hubby from East London will be coming up for a wedding and staying with us. We haven't seen them since my Grandad's funeral in Feb last year, and before that at their wedding in 2011! AND my cousin Adam from New Zealand is here to see his dad, so will be seeing him as well! I haven't seen him since 2009 I think??? So that will be great.

Going to need DAYS of sleep to recover. Been feeling SO TIRED. All the time. Very frustrating. Yay for fewer responsibilities and more time to sleep. And kitties who cuddle.

Sunday, June 19, 2016

Happy Father's Day!

Happy Father's Day to my dad! Chrislie and I love you very much!!!! It sounds like such a cliche to say "we have the best dad in the world", but we really do. My dad is awesome, he is cool and calm when he needs to be, he has a dry and witty sense of humour, he plans the best family holidays, even now that we're old and married. Trips away are always a priority, and we both inherited his love of nature and animals :-) And the importance of planning holidays to look forward to.

He loves his sons in law, he buys me teddy bears (and sterilizes them!) and coffee when I'm in hospital. We can ask him for ANYTHING and he will assist. He gives great advice, he puts us to shame with all his academic achievements (always a good example for us!).

Over the years he has enabled me to do IV antibiotics at home preventing weeks of hospital stays and doing a better job than most nurses would have. He has fought many battles with medical aid to ensure I get the best treatment, he as spent hours in ques at the Provincial Hospital in PE for meds for me. Flew with me to JHB to meet the transplant Dr and investigate this option in 2007. Ultimately he moved to Johannesburg for me and had to commute to PE to be with my mom over weekends for a few years so that I can be in JHB after transplant. Drove me to Pretoria for Photopheresis many times  in 2013/2014. And I know he will ALWAYS be there in the future if any of us need him.

He loves my mom and their relationship has set such a good example for my sister and I to follow. We are sooo blessed and proud to have this man as a dad and role-model.







Thursday, June 16, 2016

Happy Youth Day

Today is Youth Day, a public holiday. If you're not local then read the history behind this here.


Been having a really good, busy week. On Monday I didn't do much, as my car's battery was dead due to it not being driven while I was in hosp. So I was stuck at home, but not complaining as it was SERIOUSLY cold and wet. Kitties and I spent the whole day in front of the heater watching TV. I also woke up with a black eye! Got a massive fright when I looked in the mirror. It's probably a blood vessel that burst as a side effect of the higher dosage prednisone I'm still on since this recent hospitalisation. It looks HORRIBLE and no amount of make-up can cover it. Feels like I need to explain to everyone that "No, my husband didn't beat me. It's my medication."


Tuesday was also a freezing day. Had bio, which was a good way to warm up even though it was very hard dragging my ass out of bed! Breathing was quite a bit better than before hosp so that's good. Had a pretty good work-out I think. definitely have some sore muscles! Afterwards I went to have my hair cut finally! Been craving it since before hosp... From about March my hair has been falling out a LOT (in my past experience this happens when my body goes through a shock... like after transplant... and I think landing up in ICU after both lungs collapsed in Jan has caused this again). So hair has been looking crappy and thin, even though I cut quite a lot off about 2 months ago. At least it falls out evenly and I don't have bald patches! So anyway, I cut it a LOT shorter and a slight tinge of red was added, VERY happy with the result, and so much easier to wash and dry. I can still JUST fit it into a ponytail as well. (Note fringe is strategically hiding black eye!)


Yesterday I did some grocery shopping, and met with a friend for coffee. Last night Andrew invited us over for some soup and wine with friends so had quite a late night, but lots of fun. Today we slept in a bit, and joined another couple for lunch and Krispy Kreme doughnuts! The rest of the day has just been spent doing admin stuff and being close to the heater. Chris has taken tomorrow off as well, don't have any plans yet, I need to get to the pharmacy somewhere during the day. Hopefully eye looks better soon.


Sunday, June 12, 2016

Freedom

Home after 16 days in hospital and very happy about it!!!  Got discharged late Friday evening, and had the most amazing sleep till after 10AM yesterday morning. We celebrated my mom's birthday with lunch out (had what tasted like the most amazing steak in the world) followed by coffee and lemon meringue pie at my parents' house. Spent the rest of the day just unpacking and doing laundry. Lungs feeling better than when I was admitted so hopefully the feeling lasts.



Kitties were relatively happy to see me... As can be seen in the above pics they ignore me but Peppy (black one) cuddled tightly against me the whole night on Friday. Have a rather busy week planned... stocking up the house with food, seeing biokineticist, having hair cut, need to go to pharmacy, catching up with a friend... Thursday is a public holiday, and Chris has taken leave for Friday, so we'll just chill together at home on those two days.




All in all just very happy to be home. Less than 3 months before Anna and Casey arrive, so getting VERY excited about that. Need to start prioritising all the things we need to show them in Joburg! And try to keep lungs stable!

Thursday, June 9, 2016

Happy birthday to my mom!

In less than an hour's time it's my wonderful mother's birthday! Baie geluk met mamma se verjaarsdag, ons is soooooo lief vir mamma en danksy mamma het ons OK uitgedraai :-) My mom is AMAZING, She has always been there for my sister and I (except when I get a tattoo but even that she forgives eventually). She raised us to be the best people we can possibly be, and I often catch myself saying something and totally hearing my mom's voice coming out of my mouth, but it makes me proud because if I turn out to be half the person she is it means I turn out pretty awesome.



I can't believe it's already a few days into June... time seems to disappear when you're in hospital. Winter is here. (I recently binge-watched Game of Thrones so now this sounds weird to say). Hoping to go home tomorrow, feeling way better than when I came in at least.


Finished another blanket and colouring in pic...



Not much other news, craving to get my hair cut when I get out of here, and be home with my hubby (who has been amazing once again while I've been in hosp) and the kitties (who are going to ignore me for a while). And sleep in my own bed with an electric blanket.

Oh and on a funny note, found THIS in the week and I think it's BRILLIANT!!!!

Tuesday, May 31, 2016

Very quick little update

So the most exciting news in recent times is that we had someone run the Comrades Marathon for Love Life; Gift Life! He is Justin, the owner of Justin Jeffery Biokineticists the place where I go for my weekly bio sessions. It all came together very quickly but was something really cool, and hopefully just the start of more such big things.




We have also set up our Twitter page now (see side panel on my blog) so please follow us and like on Facebook etc! Need all the support we can get!

I'm currently in hosp for my regular Pseudomonas infection. Two weeks of IV antibiotics. Almost half-way at least. Feeling a lot better than a week ago already.


Can also finally post my latest crochet blanket, that was a wedding gift for Ditha and Riaan. Did a new pattern as you can see! Was lots of fun to do. And today is the last day of May!!! Where has the year gone???? It's good though cos it means Anna and Casey's visit is closer, but wow....


Friday, May 27, 2016

100 months!!!

Sunday marked 100 months with these lungs.... feels like that is a really long time!!!! Grateful for every memory made in those 100 months!


Monday, May 23, 2016

The Wedding!

On Friday we picked up Brendan at the airport and headed for Porterville! It's a small town in the Western Cape, and this was my first time there. The mountains were beautiful!



The Friday evening was an informal catch-up session... great way to kick off a weekend where the guests have come from far and wide and need some time to reconnect! Saw some university friends who I haven't seen in eight years! It was really awesome.



The wedding on Sat was ABSOLUTELY STUNNING. Ditha and Riaan are one of the most awesome couples I have ever met. I have known Ditha for 13 years and have never seen her this happy. The ceremony, venue, food, EVERYTHING was great.

So glad I went down for this, even though I feel like I've been hit by a bus now. Was worth it!












Friday, May 20, 2016

Cape Town Trip So Far

On Monday Andrew and I drove down to Stellenbosch from Joburg in really good time! Took us about 13 hours. Felt pretty short though due to all the laughing and talking crap in between!




Coped the whole way without O2 as I was obviously sitting down the whole time. Monday and Tuesday night we slept at Ditha (who is getting married)'s flat. We spent the whole of Monday night catching up until LATE! It was amazing. On Tuesday Andrew and I had some fantastic brunch at Schoon, and afterwards helped her with some wedding prep.



Late afternoon I went for a bite to sat with an ols school friend Nadia that was brilliant. 

Yesterday morning we headed for Cape Town where Andrew had to go do some work related stuff. Went to Truth coffee shop, that has a really well-known reputation, and inspired a blog post from Andrew.



In the evening I met up with other long-time bestie Carli! Had a ball of a time and went to Beluga, another amazing restaurant. We stayed with Andrew's cousin in town...  awesome location! Right in the center of all things cool in Cape Town. Yesterday we were lazy so we just ate breakfast and lunch downstairs (there are 2 restaurants below her flat) and watched DVDs. Last night we ate Taco's at a very cool place which was also great.






I was hoping the lower altitude would make my breathing much easier which unfortunately it hasn't really. But still having fun. Today we're picking up Brendan from the airport and driving through to Porterville where the wedding will be taking place. Very excited!!!!