Monday, April 24, 2017

How Things Are

This past week has been tough lung-wise. I've been more short of breath than usual, and don't know why. I missed both sessions of bio last week. I have sent in a sputum sample, that came back clean (even though it was gross and green and tasted like shit). I had a blood test done to check for infection... there is nothing. I was mentally preparing for a two week hospital stay but there is no reason to admit me as I don't have anything wrong that can be treated. So what it boils down to, is a case of "It is what it is". I have turned my oxygen up and am doing less. Going to give bio a try again tomorrow morning because SOME movement is better than none. Saturday marked another lungaversary, yay!

On to some more positive stuff... Adriaan is amazing, soooo cute. Definitely the best baby EVER, And definitely motivation for my lungs to keep going! Helped my mom to babysit him on Sat evening, we had so much fun. Three weeks of him being in the world today! Sorry for all the baby pics but too good not to share!

Not much else happening... Peppy, our black kitty is going for a dental procedure tomorrow :-( Poor kitty... he is the sensitive one and my heart breaks thinking of him all alone at the vet. He has never been alone before, the other cats are always with him! Oohhhh and my aunt from England, Annelie, and my gran are arriving in Joburg next week Tuesday to meet Adriaan! Can't WAIT to see them again. It's been about a year since I've seen Annelie and probably more than 2 years since I've seen my gran??? She lives so far away and is not a fan of flying... so with all the stuff happening in the last few years with my health we just haven't been to that side of the world and definitely cannot travel there now. So there is that to look forward to. Have a great week!

Monday, April 17, 2017


Ditha and Riaan were here for the Easter long-weekend from Cape Town. They stayed with Brendan but we saw quite a lot of them. Haven't seen them since their wedding in May last year so it was quite an overdue catch-up. We had a braai on Friday, watched the movie Lion on Sat at Brendan's house and afterwards celebrated Riaan's 30th birthday at Andrew's house. Yesterday we had brunch at Vovo Telo and supper at Brendan's house again. Today has been spent on the couch and tomorrow will be the same. Really really tired, but it was good for the soul.

Don't have much else going on. Lungs are not great, not much to be done about it :-( Saw the below quote in the week and it was more fitting 10 years ago, but still true to an extent. Getting quite tired of this phase. There is so much I wish I could do right now. Looking forward to seeing my little angel of a nephew this week. Can't wait to hold that precious little body.

Have a great week... below some pics of this weekend.

Tuesday, April 11, 2017

Welcome to the world Adriaan Eugene Pretorius!

On Monday the 3rd of April the most beautiful little boy came into the world on his grandfather's birthday (Pierre's dad...Eugene). We all fell in love with this little guy instantly. He has the most angelic little face. His hands are sooooo animated and always moving, He has the fullest little lips, and the cutest cheeks. And sometimes he gets this little frown on his face. He HATES changing clothes or nappies. He loves sleeping on your chest or in your arms. He also loves the sound of my portable oxygen machine! He has a very very healthy appetite. And he is loved SOOOO MUCH by many people! He is perfect.

Experiencing this addition to the family has to be one of the most amazing things I've been able to see with these lungs, all thanks to my donor. I would have missed out on this by almost a decade. Soooooo grateful xxxxxx

Friday, March 31, 2017

Bye Bye March... Hurry Up April!

The last day of March is here! This means that tomorrow is the start of AWESOME APRIL! The month in which I'm going to become an aunt!!!! My sis will be 39 weeks pregnant this Sunday. So we're all holding our breaths, waiting to see when baby will be coming! So much of excitement and can't wait to find out if it's a boy or a girl!

Before today I've been feeling less tired than last week, so that's been nice. Today however the week's activities have caught up with me feeling pretty flat. Trying not to do much and watching The Walking Dead. Good way to end a busy week I guess.

Last Saturday Chris and I went out for lamb and a cocktail at Turn 'n Tender in Parktown, which was amazing. On Monday I saw my Dermatologist, (she freezed off five little warts - two on my face and three on my chest... these are side-effects of my immunosuppressants that I take) and had lunch with my sis who is on maternity leave now at Paul in Melrose Arch. On Tuesday I had bio and bought some wool for my next crochet project. On Wednesday I went for blood tests (I was supposed to see my lung Dr yesterday but my appointment got moved) and my dad took me and my sis out for lunch! Yesterday I had bio again, followed by spending some more time with my sis... doing a bit of shopping... and Chris and I went to see a movie late yesterday afternoon. So the week as flown by!

Today has been a political shit-storm in SA after the president  reshuffled his cabinet and screwed over the country... in a nutshell. This after one of the men who fought for the freedom of this country and was in prison with Mandela, Ahmed Kathrada died and was buried this week as well. I drove past the funeral on Wednesday and it gave me goosebumps. The below statement made by Jonathan Jansen was very touching and sums it up pretty well. It's so sad how one man can care so little and mess up a country so badly, as he seems set on doing. As I do with almost everything in life, I thought back to what the political situation was in 2008 (because apart from getting my lungs in Jan that year, I see 2008 as the year I would have died... so I often think about what's happened since then. Thabo Mbeki was still president, COPE hadn't been formed yet, the EFF didn't exist, Mandela was still alive obviously... I don't follow politics a hell of a lot but bottom line is a LOT has happened! A little worried about what the next 9 years will bring.

Wednesday, March 22, 2017

Lungaversary Day Again

Another lungaversary! Nine years two months. Or as Chris tells me 110 months. These poor lungies are pushing so hard to keep me going, and doing a great job. Love them SO MUCH. Feeling really exhausted :-( Waking up with a headache and more tired than I was going to bed. Hopefully one of those random "feeling crap" weeks that randomly seem to happen and resolve itself again.

We got back from Magaliesburg yesterday, where we celebrated my dad's 60th birthday. We spent 4 nights in a very comfy cottage with great views. It was perfect for our current situation, as it's only about 90 mins outside Johannesburg, it was small enough for my oxygen pipe to reach everywhere, even outside. My sis was 37 weeks pregnant on Sunday! Only 2 or 3 weeks left to go :-) Did a few small walks with my portable O2 as well, which was nice. Check out the amazing pics...

The other cool thing I did last week was to go to the new Paul in Melrose Arch with Andrew! The first South African version opened very recently (it's European... I've seen it in London before). I wasn't disappointed, the food was GREAT! Go there if you haven't yet and are in Jozi!

Sunday, March 12, 2017

Another week done and dusted

Can't believe it's already Sunday evening again! Some weeks just run away with you! My sis is 36 weeks pregnant today!!! In a month's time the baby will be here!!!! SO EXCITING!! We went to Mall of Africa yesterday and she slept over by us as Pierre was away for work.

This past week I was really busy on Monday, Tuesday and Wednesday... On Monday I went to the movies and lunch with a friend at Rosebank. Watched Manchester By Sea... Thought it was a really good movie. Rather sad but good. On Tuesday evening we went out to celebrate my dad's 60th birthday... Had Indian food at Taste Of Punjab. Was very nice. It was a surprise as he thought him and my mom were going out for supper alone. On Wednesday we were busy with Love Life; Gift Life stuff the whole day.

I probably overdid it, as by Thursday I was DEAD tired. Couldn't do much at bio, and just went home to crash in from of the TV. Friday was also just spent relaxing with the cats and recovering.

Coloured in a bit for a change. Tired of crocheting right now (although we're going away next weekend so will be doing some crocheting then). Have managed to read 4 books this year already and super impressed with myself about that. It's already 3 more than I did last year. I used to read a hell of a lot when I was in school. However the last few years I haven't had the time to read much, and when I did, I struggled to pay attention and there was too many distractions. The next challenge would be to play piano again but I'm DEFINITELY not ready for that challenge yet! 

Hoping this week goes by quickly as well, as we're going away for a long-weekend  on Friday to carry on celebrating my dad's 60th. Not going far, just to Magaliesburg which is roughly 90 mins away. Definitely need to take some boardgames with... one daughter will be super pregnant and the other daughter will be super unable to breathe well, so chilling out will be the nr one activity! On Monday I saw the below scratch out tourist map of New York on sale, and I HAD to buy it. Going to Ney York one day is on my bucket-list of things to do! I believe that one day I will be able to!

Tuesday, March 7, 2017

Happy 60th Birthday to my dad!

Today a legend turns 60!!!! Baie geluk met Pappa se verjaarsdag, ek hoop dis die beste jaar ooit!

This weekend we also celebrated Fawny's lungaversary. Four years!!!! Have been lucky enough to celebrate each one with her. We had lunch at De Vette Mossel at Hartebeespoort Dam. very nice and different seafood place with a West Coast vibe. The below pics and video wraps it up perfectly: