Tuesday, July 29, 2014

Happy birthday Chrislie!!!

My baby sister turns 27 today!!! We're getting old!!! Hoping she has an amazing year :-) And so glad I'm still here to share her (AND MY) "getting old"!

Monday, July 28, 2014

Charitea! - a must read if you're in Jozi!

My fellow CF and post lung transplant friend Fawn has started a charity event called Charitea!!! She will be raising funds for different charities of which the first is the Organ Donor Foundation. There is only 60 seats available and they are going fast.... so if interested please check out her blog for more detail. And if you cannot make it check out her blog anyways... because it's awesome.

Sunday, July 27, 2014

8 km walk done!

I survived the 8km Discovery Walk the Talk! Yay! Had to slow down with uphill but at least didn't have to stop once. It was litterally FREEZING at the start (zero degrees C) and we were dressed like eskimo's. Legs pretty sore now as it's also a long walk from the parking to the race so we did at least 10-11km. And haven't been in the gym as much as I need to! My lung function is exactly half of what it was the last time I did this walk in 2010. It was 104% back then (thanks blog!) and is 52% now. At least I COULD still do it, and hopefully I can again next year.

Last night we celebrated my sister's 27th birthday by having supper at Grand Central in Melrose arch. One of my favourite restaurants and it didn't disappoint. So a pretty good weekend.

Thursday, July 24, 2014

Pretty good lungaversary check-up

Tuesday's check-up on my 6 year 6 months lungaversary went well. Lungfunction was 52% FEV1 and 95% FVC (capacity). So all in all a 1% drop in 2 months... not bad. Rest was all good. Best part was that my friend Fawn was also there for check-up which made the hours and hours of waiting (hopefully Dr doesn't read this LOL) a lot better. Seems thus far that the photopheresis worked ... if lungs stay stable like they seem to be. Next check-up is 28 Aug... 3 days before I turn 30! Can't believe I'm facing my last month as a 20-something year old. Amazing and a bit surreal.

This weekend we celebrate my little sister's 27th birthday (on 29th of Jul) and I'm also doing a 8km Discover Walk the Talk.... My lungs will probably hate the uphill... but will just slow down for those. Also hoping to train for the Nationals with the coach from next week (will be doing shot-put and discus) as it's getting closer!

Have a good weekend.

Saturday, July 19, 2014

Down the rabbit hole.... soon

In preperation of my 30th.....  invites have been sent!

Monday, July 14, 2014

Fun Weekend

Had a good weekend. Friday eve I went to the movies with a friend for a girl's night. We watched Blended, with Drew Barrymore and Adam Sandler which is set in South Africa (mostly). Was quite a cute movie! On Sat morning I had my hair cut and coloured. On Sat eve we watched the rugby at a pub called Giles in Craighall with Andrew and 2 friends of his from PE who were here for his birthday.

Sunday was the big party.... Andrew's 30th! The theme was Shady Pines Retirement Village... for active seniors. We played bowels and had a lot to drink! For lunch we had amazing lamb and for dessert yummy Peppermint Crisp Pie.  Was definitely feeling a little hungover this morning! Looking forward to my birthday!!!!

Sunday, July 6, 2014

Booked off till Wednesday

I have Coronavirus according to nasal swab!!! It's pretty much a cold but because I'm a transplant patient it's serious enough to keep me out of society till Wednesday. BAD news work wise though, tomorrow is final day for some month end reports to be in, and I have one rather big one that's not done :-( Tried bargaining with my Dr but he insists I stay home till Wednesday. Oh well... will try to make the best of it.

No other news... just spent weekend in front of TV mostly. Hope this doesn't affect lung function!

Friday, July 4, 2014

sick... bleh

So after a few days of being around some pretty sick people at work, the expected happened and I got sick too. Surprise surprise... wish sick people didn't go to work, but that's a battle I'll never win. Went to work yesterday despite feeling like crap, it got worse during the day and ended up seeing my Dr last night at the hosp in casualty. Felt like my head was going to explode with pain and misery, sore body and snot everywhere (sorry!)

Looks like I have flu, so they did bloods and a nasal swab, and in the meantime I have started with Tamiflu. Also got some pain pills and nasal spray, so at least I slept very well last night! I was booked off from work today, and depending on the results of swab and bloods I might be able to go back on Monday. Really hope so as it's month end and reports need to be submitted on Monday! Luckily I still have the weekend to rest too.

Friday, June 27, 2014

53% again... yay

Lung function was stable yesterday at 53%... same as last time (although used a different machine). So that's good!! Weight down a bit - need to eat more I guess, and blood pressure meds have been increased. I also did 6 min walk test (in boots... not best idea ever, shins sore today!). At then end of test SATS were 85% (but went up again quickly) and HR 160. The last time I did the test was 11 months ago, when SATS were 90% afterwards and HR was 145. At that time lung func was also 69% still. Dr is happy with the stable result, he thinks that the photopheresis worked. Curious to see what it will be like next month.

In other news, I got a new pair of glasses, been working hard, been bad at gymming, and very glad it's weekend! Below is also ladybird I was on Sunday.... some people say they're good luck... I'm not superstitious, but it was cute anyway. On our way out now to supper at Dopio Zero with sis and Pierre. It's the weeeeekend baby!!!!

Thursday, June 19, 2014


I've been a very lucky lady this week, as yesterday I had an awesome delivery at work from Chris! Tulips (which mean "real love" apparently), a succulent in a glass jar, chocolates and a card! Was very surprised and it made my week! The succulent is now on my desk at work as that's where I spend most of my waking hours!

On a different note, I've been to gym 3 times in the last week which is pretty good!!! I try to do 10 mins of walking along with the weight training but REALLY don't like doing cardio anymore. Makes me feel short of breath. I also need to start thinking more seriously about whether I'll be taking part in Nationals in October, and if so, what items I'll be participating in. In a week's time I'll be going for lung functions again so maybe that will shed some light on the matter, although I know there won't be any drastic change. But hoping to do a 6 min walk test to compare to last year's one that was done just before the Games.

What else..... work's been good and productive. Luckily we're at the more quiet time of the month now. Tonight I'm going out for pizza to celebrate a university friend's 30th birthday. Don't have much planned for the weekend yet... on Sat morning I have a Transplant Sports meeting and on Sunday I'll be going for bloods and visiting some peeps in hosp. And it looks like it's going to be pretty cold so will definitely watch some TV in front of the heater!!!

Sunday, June 15, 2014

Father's Day

HAPPY FATHER'S DAY TO MY DAD!!!! My dad is amazing... he loves his children SOOO much. I really couldn't have asked for a better dad. As far as CF goes I hit the jackpot with my dad... he did so much for me... dealing with the Provincial hosp  in PE (DIRTY yucky place) to get my meds, fighting with medical aid (before it became my battle...), playing nurse and doing my IV's at home for me (waking up early, coming home during lunch-time, and then again at night). Taking me up to JHB to see the transplant Doc, taking a job in JHB and moving here on his own  for when I get the call... and even recently helping to take me to Pretoria for my photopheresis. I've witnessed CF dad's who are in denial about their children's disease or who are not involved... and I really have been one lucky girl.And all of this while still being a great husband and example to me and my sister of what a husband should be AND being an academic freak professor who keeps on studying!!!!.He has also been great in accepting Chris and Pierre as his sons, and has forgiven me for all the tattoos :-p


Monday, June 9, 2014

Cape Town weekend

The weekend in CT was AWESOME. Had lots of fun and connected with friends I've had for 25 years plus!! It was just great. Unfortunately also tiring and only landed back at 11pm last night! Felt sooooooo tired today, but hopefully I sleep well tonight and feel more rested tomorrow.

At the bottom is a stunning bowl my sister gave me. Very appropriate!!!