Monday, November 30, 2009
ALSO, I finally found my last x-ray taken with the old lungs, a few hours before surgery. They look crap, but the way my lungs were feeling I think they should've looked worse!
Friday, November 27, 2009
Sunday, November 22, 2009
Friday, November 20, 2009
My year-end function last weekend was pretty cool, will post a pic or 3 later. This weekend is going to be quiet and snuggly hopefully! Recovering from a hectic week and preparing for the next one in the rush to year-end... *sigh*
Jolandi and Louis are both doing great! Louis was discharged today (2 weeks and 2 days post transplant), and Jolandi is on track with getting energy back and getting used to the meds etc.
That's all for now!
Friday, November 13, 2009
Thursday, November 12, 2009
Last night I did another talk in a Jewish community centre, where the Rabbi was also present to answer questions. The big issue in the Jewish faith with organ donation is the concept of brain death. They believe as long as a heart is still beating, even though the person doesn’t breathe anymore. So the perfect compromise would be waiting for the donor’s heart to stop and immediately remove the organs, although I’m sure that has its own complications. It was an interesting evening, just badly attended unfortunately!
Tonight I’ll be visiting Louis, he’s really doing fantastically! Jolandi is home, and will be seeing her on Sat! So glad they’re doing good. I’ve also got my company’s Year End Function on Sat evening, which should be fun! Will post pics!
Please pray for Eve (mentioned her a few posts ago), as she’s in hosp, and urgently needs new lungs again.
Friday, November 6, 2009
ANOTHER CF’ER FRIEND GOT LUNGS!!!!!!!!!!! Louis, who lives up here and whom I’ve often visited in hosp finally got his lungs on Wednesday! He’s waited more than a year and a half, and was just discharged after being in hosp for AGES, when the hosp called and said he must come back! Apparently he’s doing really well, and I’ll go in to see him tomorrow morning. He had so many plans for what he wanted to do once he got the new lungs, and now he can actually start recovering and doing those things!!!
Jolandi is also doing great, she’s going home this weekend! She still has the NG tube though, which will stay there until her throat is all better again.
Some sad news… Maryke, the girl waiting for lungs who got married just over a month ago passed away yesterday morning. She had gotten better, but seems like she just took a turn for the worse again. May she breathe easy now. Feeling very sad for her husband and family…
My week’s been SOOOOOO busy. On Monday I had my 3-monthly check-up, and lung function (FEV1%) was 100% on the dot! Not even a decimal value… just 100%. I’ve been at 97% for MONTHS, so was a nice surprise to see 100%! Everything else was also perfect, apart from CMV (a virus that was in my body pre-transplant, that most people have, but because I’m immune-supressed it may cause problems post tx) starting to show up in my blood results again so I’m back on Valcyte, even though I feel great. Think I should just stay on it… problem solved.
Tuesday eve I did a short talk at the CF assoc’s golf day. Unfortunately there were mostly golfers and not many CF people, but met some cool parents of CFers! Also got some great chocolates and wine out of the deal :-)
Wednesday night I had church cell, and last night we had supper at a friend’s place! This weekend Chris and I will be house-sitting (well until Tuesday actually), so that should be cool. Just wish the weekend could start now though!!!!