Monday, November 19, 2018

The lungaversary party, the Achilles and the radio interview

On Saturday evening the 10th of Nov, my parents hosted us and a couple of friends for a 1 year lungaversary party! It would have been more fun and I would have felt less useless if I weren't on the crutches, but it was still great!

The following Tuesday I was on Jacaranda FM, a local radio station, to talk about CF and transplant. I was on the show for the whole hour, talking on and off... but they put the first bit on their website... if you'd like to have a listen!

I also had an Achilles check-up on Friday. I can now walk crutch-free! I'm wearing this sandal thing, with two heels on the inside, and it's allowing me to put weight on the foot. This "pointed toe" position doesn't put strain on the tendon. On the 14th of December my cast will come off, whoop whoop! Then I have to wear high heels for another 6 weeks and start with physio. I was able to return to bio last week, which was GREAT. I'm trying to strengthen my left thigh, as it's already lost quite a lot of muscle. It's just great to be doing some sort of workout again.

I also asked to do a lung function test while I was at the hospital on Friday, because I had been feeling a bit anxious. My new medication (cyclosporin) levels are STILL too low, and has been adjusted for the 3rd time in as many weeks now. Normally when a bout of anxiety hits me I fix it by doing cardio.... I always feel relaxed and comforted again after a short run or spinning class. Now I can't do that :-( So I did a lung function test and luckily all was good. Phew! By the time the cast comes off I should also be able to switch back to my normal anti-rejection regime, which is a fifth of the cyclosporin I take now, plus Everolimus (Certican). Looking forward to that! And to slowly increasing my physical activity. It's been amazing to be able to do some stuff around the house again for the last 2-3 days. Some freedom!

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