So this week has been crap... Lung function down another 2%... which now puts it at 63% FEV1%. FVC (volume) 100%. Very disappointed... just doesn't want to go up or STOP going down, even if deterioration has slowed down. Feels like there is no point in going to gym and working out anymore but I know I'll persist. UUGGGHHHHH
Photopheresis was fine today. No hassles and they used the new machines on me for the first time today... apparently it does a better and more accurate harvest. So that's cool.
Now just to survive another 3 days of work then then off to PE for some FUN. Much needed fun.