So this week has been crap... Lung function down another 2%... which now puts it at 63% FEV1%. FVC (volume) 100%. Very disappointed... just doesn't want to go up or STOP going down, even if deterioration has slowed down. Feels like there is no point in going to gym and working out anymore but I know I'll persist. UUGGGHHHHH
Photopheresis was fine today. No hassles and they used the new machines on me for the first time today... apparently it does a better and more accurate harvest. So that's cool.
Now just to survive another 3 days of work then then off to PE for some FUN. Much needed fun.
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3 comments:
Sorry to hear about the crappiness :( The photo of the new kitty is adorable though! Picture of comfort and contentment...
Thanks! Yes he is a little bundle of light!
Hang in there, Alice. Never, ever give up! You have come too far and accomplished too much. I'm praying for you!
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