Thursday, January 21, 2016

8 years!!!!!!

Tonight 8 years ago at about this time I got my call for lungs. Tomorrow is the big day. 

In case you don't know, I'm in hospital since yesterday. The feeling tired and short of breath just got the better of me. Having a million tests done. Feels like I'm on like 10 new drugs with shitty side effects and nothing is making a difference. Just getting more tired.

The sleeping with oxygen has been nice. Have sent application to med aid for home O2. Did lung functions today. No change in FEV1% really. But big diff in walk test. 13 days ago i did it and O2% was 83 after walk. Today 78%. Other than that and a bad CT scan nothing really comes back as abnormal. Very frustrating, had a lot planned for weekend which I will have to cancel. One cancelled and unless I get out tomorrow there's no chance the rest will happen.

This will be an interesting year I think. That is code for challenging. Some changes will have to be made.

But THANK YOU DONOR, thinking of your family. Thanks for giving me a life in my 20's. And so far a bit of 30's. You are the hero of my life. You gave me normal.


4 comments:

Sherry Boyle said...

Oh, Alice, I hope you get some answers soon that can help you figure out what is going on. What do you mean by a bad CT scan? Praying for you!

Alice said...

Dr says it shows "changes" that weren't there before. So he is investigating.

Eugene Pretorius said...

Groot drukkies - ons dink aan jou. Vasbyt

Judy said...

I pray they figure out and fix what is going wrong and you feel better soon.