Tomorrow it's been 88 months of togetherness for me and the new lungs. Thank you lungies for being awesome and I'm sorry my immune system is an asshole :-(
Have survived first week back (so far) after being sick. Lungs feeling good, just feel like I am so tired still and need like a month of sleep! Hopefully after this weekend that will be better. Next week I will brave the gym again and slowly start getting "fit" again.
Saw the ENT for another sinus check-up yesterday. Feeling sooooo frustrated because after a sinus x-ray, sinus CT, nasal swab that showed infection, and 3 ENT visits it turns out I just need take pain meds, carry on using the nasal spray and sinus rinse and hope for the best. Sinus issues are a part of having CF, but it's never really bothered me like it has recently. I don't take pain meds for "bearable" pain, as I feel my poor kidneys have enough to deal with, so I try to stick to "necessary" meds (ie pic below). I'm just venting though, so please don't give me more sinus advise :-p
By the way, see here for an exciting new drug treating MY mutation of CF! (too late for me as old lungs are long gone, but it's awesome!). I have Facebook CF friends who were part of the trials and they are all very positive about it.
Tomorrow also marks 7 weeks to go to our trip!!!! We have collected out Visa's this week so that's all sorted. Excitement!!!!