I will also be inhaling one of my pre-transplant antibiotic friends going forward (starting today), Colistin, Need to get an e-flow nebuliser! Initially I was inhaling Tobramycin but the Pseudomonas is resistant to that too apparently.
Went for lung function yesterday. When I was admitted FEV1 was 41% and in the walk test O2 sats dropped to 78% or so. Yesterday FEV1% was 38/39%, SATS dropped to 80% but walked a bit further. So not much of a change but at least lungs have recovered from the incident. O2 sats on room air are 92% so managing without O2 during the day, Trying to move around as much as possible and have been climbing stairs slowly again since my drip has become more portable thanks to the CADD pump as seen below. Yay for small freedoms.
Been enjoying the colouring in... have books to read and crotcheting to do as well, but so far this has been grabbing my attention the most. Entered this competition as well which I think is pretty cool.... for Rare Diseases SA (I think CF falls into that category? Not 100% sure). Anyway, if you're into colouring in then support them!
Click here for the compitition
Have had nice visitors, Louzanne's mom, Jessica, amazing family members as always. Couldn't fall asleep last night, too much stuff to think about :-( Hopefully tonight I will do better.