Wednesday, January 21, 2009

Today a year ago... the miracle CALL!!!!

So tonight at 11:39pm a year ago, I got THE CALL that changed my life as I knew it. Read my blog posts from that day here. The post I did when finally calming down and letting all my friends know (by phoning everyone awake at about 00:30am!) is this one. One very dramatic day with hearing I can't go to Florida for my transplant, dealing with that disappointment, reverting to alcohol (cocktail with friend to get my mind off things) and of course THE CALL, that didn't even wake me up, as I couldn't fall asleep... too busy thinking about everything happening to me... if only I knew! Most exciting and scary night of my life... will continue about that tomorrow!

Sooo, this week has been as crazy as I anticipated so far. My Drs appointment went FINE. Bloods were all good, altough hemoglobin is a bit low and I have to take iron tablets for 3 months, which is no big deal, as I took it a while ago but stopped. Lung functions were great. FEV1% (the amount of air you can blow out in 1 second compared to the "average" person of your weight and height) was 96/97%... and FVC (Forced Vital Capacity, which is your lung volume) was 110%. FeNO (Nitric Oxide, which may measure levels of rejection) was 18, which is good. Lower is better! Also took cookies to my Dr's rooms, the surgeons' rooms, and the ward where I was in for most of my awake-time!

My right foot is seriously sore though... I gymmed hard of Monday night, and even though my foot's been sore since last Thursday, stupid stupid Alice kept on going on the treadmill, ignoring the pain and thinking about Australia... so I woke up at 3am on Tuesday morning in PAIN... took one of the pain-pills I have left from my transplant, but all it did was put me to sleep. Decided not to gp NEAR the gym again till Sat and rest my foot. Well when I woke up this morning it felt even worse, but got Voltaren Gel, so it better get fixed now!!! Can't let pain stand in the way of that 3 km...

Will DEFINITELY post tomorrow!!!!!


CFHusband said...

Yeah! I remember reading your blog that day!!!

Laura (UK) said...

Alice i started reading your blog a year today,what an amazing year you have had!!!
Congratulations on your 1 year anniversary with your new lungs and may your good health continue.

Laura ,UK,CF sister,your Facebook friend :)


drained in sj said...

Happy for you. (Take care of that foot.)

Linda said...

Can't believe it has been a year since I started reading your blog. Congratulations on the transplantiversary. I am so sorry about your foot. Hope it repairs itself real soon.

We are in Birmingham now for further evaluation for Jamie's DLT. We will get their decision on February 11. I am praying for God's perfect timing and that he will have a wonderful outcome like you have had.

Mother of Mandy (with the angels) Kyle, Hunter and Brady wo/cf and Jamie, 22, w/cf

Anonymous said...

WoW!!Alice!!ek is so bly jou lewe kon so verander het! ek het jou blog begin lees toe ek by iemand (kannie onthou wie nie) hoor jy het die oorplanting gekry!dis so amazing wat jy als in die jaar wat verby is kon doen!wat n exciting jaar, ne!God is goed!!

(ek ken Chrislie deur Klema, en het so van jou gehoor)

Sterkte met dai voet, bid vir jou!