“Life is not measured by the number of breaths we take, but by the moments that take our breath away”
Saturday, May 31, 2008
Saterday night and I DO have a (dinner) party...
Friday, May 30, 2008
Stuff at the moment
Wednesday, May 28, 2008
A year ago...
When almost hitting said woman, I was on my way to supper with my boyfriend and a close friend (who is actually also an ex, now that I think of it...weird). On the way home I was really struggling to breathe, and probably coughed up some blood as well. So while trying to stay alive and not think of the semi-fight my boyfriend and I just had, I drove over a red traffic light. (note: I am NOT a bad driver, contrary to what happened on this day) And there was a camera, that took a picture, and I got a R500 fine. At least I wrote them a letter of apology and said I'm a poor student-didn't mention the not-being-able-to-breathe, what if they said I'm not fit to drive?!- and so they reduced the fine to R300. Bad thing #2.
And now for bad thing #3... the boyfriend broke up with me, at about 11pm that night. He was my longest bf ever (only 9months, but that's long for me), and I really thought that I might marry this guy (thank goodness I'm not though!). So there I was, shattered, not being able to sleep, not being able to breathe. Broken heart and broken lungs...very dramatic, I know! But anyway, at least we get along now, and everything is fine I guess.
28 May 2008. My heart is happy, my lungs are SUPER, making new friends of all ages, getting fit, praparing for the Transplant Olympics (see previous post), getting a job, loving life.
So what's the big life lesson? When things are REALLY REALLY LOW, in a year's time, they may be REALLY REALLY GREAT.
Tuesday, May 27, 2008
Me and Bree's dream......
"We've been couped up with lung disease for how long, not able to do ANYTHING and THIS is our ticket to meet eachother and THIS is out ticket to live our dream of LIVING."
Bree must just GET her tx first, but she'll get it SOON... the waiting list in Toronto is 2-3 months, and she's already waited more than a month...
How cool is this going to be!!! We want to do erotic dancing and running or something...
Monday, May 26, 2008
The weekend continued
Sunday, May 25, 2008
Sick picture
Saturday, May 24, 2008
"It's Saturday night and I aint got no party"
I've also realised (especially with Trevor's transplant this week), that I really want to be involved with talking to donor families before transplant, as well as the recipients before and after transplant. I think that having had a transplant and having done 4 pshycology modules at university qualifies me for the job. That is if a job like that even exists, which I will find out... it obviously won't be full-time or anything, because they don't do that many transplants, but would love to do something like that on top of a 'normal' part-time job or whatever. Anyway, I'll figure it out as I go along!
Tonight we're just chilling (again), watching a dvd and eating steak pie, yummy! My mom and I will probably do a bit of shopping tomorrow morning, and she has to be at the airport in the afternoon. My favourite aunt from the UK, Annelie (who often comments on my blog), will be arriving in SA tomorrow as well!!! Can't wait to see her, as she is like our second mom, but unfortunately she will be spending 2 weeks on my grandparents' farm first, before coming up to Joburg with my mom for a few days. We are going to have a BALL of a time... can't wait!!!
Friday, May 23, 2008
Friday
My mom is here for the weekend, which is great!!! Don't have anything specific planned for the weekend, but sure we'll figure something out.
The guy who got the lung, Trevor, is doing fine so far as well. So everything's going as planned, except for poor Dr Paul who is tired as hell and haven't slept much in the past few days. Feeling very sorry for him!
P.S. I corrected the link on the '4 months post'! So now you have no excuse not to register!
Thursday, May 22, 2008
SOMEONE IS GETTING A LUNG!!!!!!!!
4 MONTHS!!!!!!!
Which brings me to my next VERY IMPORTANT point... PRAY THAT ANOTHER LUNG TRANSPLANT GETS DONE IN SA VERY VERY SOON!!!!!!!!!!!! The previous lung tx was 3 months ago... there are 20 people or so on the waiting list, all desperate for lungs. And at the rate of transplants happening A LOT of them won't make it... So I really beg you, just take a few seconds out of your day (after registering if you're not a donor of course), and pray for a successfull lung transplant... I really beleive in the power of prayer, and it's no coincidence that my tx journey has been without any problems... I've had you guys and countless folks at home praying for me, and they still do, and I'm so thankfull for it.
That's pretty much all I've got on my heart. Still looking for a job, had one unsuccessfull interview so far, but I may have found something VERY promising last night. Going for a mystery x-ray tomorrow, which my Dr said I shouldn't worry about, as he's just being over-cautious. But that's like telling a child not to touch the wet paint... obviously they ARE going to touch it!!! But I'm not THAT worried, because my lung function is better that ever and I'm not feeling short of breath or anything funny.
Wednesday, May 21, 2008
Lat night's transplant function/'supper'
Monday, May 19, 2008
The rest of the weekend...
Then we watched Juno on dvd! I've been wanting to watch it forever, but when it was showing at the movies I wasn't allowed to go yet! It was a really cute film, and I wasn't disappointed. We also went to church, which was cool as usual.
Today's going to be another day of being a housewife. Have to do ironing, buy food, clean the flat a bit, make supper... not very exciting, but I really can't complain after the weekend I've had! Looking forward A LOT to tomorrow evening... Netcare is hosting a supper for everyone involved with the heart and lung transplants at the hotel next to the hospital. I'm not quite sure what to expect, but looking forward to it anyway! Will post all about it on Wednesday!
Sunday, May 18, 2008
Sunday Morning
Saturday, May 17, 2008
Short Post
On out way to Sandton city right now, apparently the biggest shopping centre in Africa... We're gonna do some window shopping, and maybe even some real shopping should we be able to afford anything with all those designer stores...
My visit to the Dr (Paul) yesterday was fine, lung function 99.3%(FEV1%). Where is that other 0.7% that I'm chasing?!?! He did however say I have to go for another x-ray next week, which I am trying not to worry about! But anyway, have to go!!!!
Thursday, May 15, 2008
Thrilling Thursday!
Last night I went to my first church home-cell meeting. We had a farewell braai (BBQ), as one of the couples are leaving for East-London. It was really very nice, and met some great people. And the best thing about socialising with these people is that NO-ONE SMOKES!!! Which is rare under young people here. Don't ask me why, but people smoke A LOT more here than in PE... maybe they're more stressed out, but I hate it, and it really irritates me, and I don't always want to be the bitch who tells them to go smoke outside.
Going to gym again this morning. No stiffness left, so it's all systems go! Especially as I might not make it to gym tomorrow, as I'm going to be spending the whole morning at the hospital (for bloods, x-ray, lung function, and appointment with Dr Williams), and have to fetch my bestest bestest best friend Louzanne at the airport. My dad's also going home this weekend, so for 3 nights it's it's going to be the 2 of us!!!! LONG sleepover, yay!!! We thought about it the other day, the last time we spent 3 nights together was January 2004 (I'm good with dates OK, not some nurd that writes everything down! Except for the blog of course... but that's cool!), more that 4 years ago! So my mind's just racing with all the fun things we can do!
P.S. thanks for all the comments on the last post. Seems like the way to get people to comment is by disclosing scandalous info! I must remember that, lol!
Tuesday, May 13, 2008
Tuesday ramblings
As a Grey's Anatomy fan, I have found a new addiction... BREE'S BLOG! If you're a fan of the show, then read all about McIntern, the Josh Groban look-alike intern that helps Bree with rehab in preperation for transplant! Wish there was sexy young interns at my hospital... *sigh*
Speaking of which, I'm visiting Lucille, a girl my age who is having her work-up done for a lung transplant, tomorrow! Looking forward to it, and should see some of my nurses again! Yay! And Peter's coming over for coffee this afternoon after his appointment with the surgeon (whom I unfortunalely don't have to see anymore). So that's my day so far... a bit boring!
Monday, May 12, 2008
A new week!
We got some VERY nice beef with sweet and sour chilly sauce shwarma's for lunch, that we ate at home. Spent the afternoon watching E! Entertainment and reading mags. And saw the repeat of the 'A boy called Alex' documentry! After that they dropped me at my grandfather's house, where I just chilled and read a bit, and took a pic of a 'kwê-voël'. It's a kind of bird (obviously), but I don't have a clue what it's called in English! Yesterday we had lunch at my Aunt and Uncle's place, and my 2 cousins were there as well, which was a nice suprise! One of them is married with 2 children, and the little girl is SOOOOO CUTE!!!! Her name is Lana and she eats A LOT! She almost gave me a run for my money! After that when my dad and grandfather was taking a nap, I got to see last week's Grey's Anatomy episode!!!! Yay!!!!
When we got back I went to church, which had a great sermon about prayer, not really predictable or boring at all (which a sermon on prayer might sound like!). And there's going to be a cell-group meeting on Wednesday, which I'm looking forward to!
What else? Going to gym later this morning, looking forward to running again, as my legs aren't sore anymore! Then I have to do some serious food (and cheese) shopping, as we're running out of food here! And speaking of which, I need to have breakfast now, which is actually my least favourite meal of the day. Such a limited choice... *sigh*
Friday, May 9, 2008
The 'healthy' post
Thursday, May 8, 2008
Encouraging news and random naughty cat pics...
Wednesday, May 7, 2008
Instablog articles
Hope Personified (about Tricia and Nate)
Proper Healthcare only for the rich?
To emigrate or not to emigrate
You are what you eat...?
Article that was in the Sunday Independant... bit about me anyway...
Tuesday, May 6, 2008
To-do-list report-back so far...
So I thought I should go back to my to-do list and see how I'm doing...
Here goes...
- sleep over at someone's house... the last time I did that was middle 2006 somewhere. I slept over at a friend's place without my O2 and didn't sleep much. And I felt horrible the next day. Yup, slept over at both my grandparents' houses and had 3 of my friends sleep over at our place
- sleep over at someone's house without worrying about coughing them awake at night or being self-concious about my 'heavy breathing'... never Came true when I slept over at grandparents and with friends... they couldn't beleive it...
- swim in the sea... the last time I went into the ocean was Jan 2007. I walked in and the waves hit me so hard I couldn't stand still to catch my breath and my boyfriend at the time had to hold onto me to keep me from freaking out/passing out/drowning! Would've been very romantic if not for the fact that I was BLUE and exhausted! Not yet, will do so in summer!!!!
- visit my grandparents in the Karoo and go to their farm... the last time I was there was in Nov 2006. What would've been a nice break after being on IV's for 3 weeks ended abruptly when we had to come home after one day because I couldn't breathe there. Done that!!!!
- go on a real holiday... I never left PE last year, waiting for THE CALL. My last holiday away from home was in Jan 2006 when I went to Cape Town with friends. It was after that trip that my health started deteriorating fast. Well we spent the night at Storms River, which was a bit short, but it still counts!
RUN... this is one of the biggest ones. I haven't been able to run for about 5 years, and even before that it was only short distances. I actually used to be in my school's athletic team when I was 9/10 years old! I might have forgotten how to do it :-) I'M DOING IT!!!!! And loving it!!! - go for a early morning walk on the beach... my mom and sister always jog along the beachfront early in the morning, but I've never been able to even walk then, as early in the morning was my COUGHING TIME!!! That's when 8/9 hours' worth of packed up mucus had to come out! Done that as well, was great.
- getting a job with my degree... never Working on that one...
- survive without electricity... never. I always needed electricity for nebs or O2. Now I don't. My transplant's timing was excellent in light of (no pun intended) Eskom's power cuts! Survived all the loadshedding!!!
- Not having people ask me about my cough and seeming 'normal'... almost never. Yup, especially now that I don't have to wear my mask all the time!!!
AND... a new one... I've started gymming!!! Joined the Virgin Active gym yesterday, and went for my first work-out this morning. Did 30mins of cardio (ran/walked 2km and cycled 3km) and did some leg stuff. Not a lot, but I'm going again tomorrow afternoon!!! Don't want to hurt myself by working out too hectically too soon. Being responsible... :-)
Monday, May 5, 2008
Busy Day!!
Antoinette's doctors have still not figured out what's wrong, and I'm still trying to get her to see a Dr here when she eventually comes to visit... but at least I think she's feeling better.
There was an article in the Algoa Sun last Thursday, that I didn't see, because THEY DIDN'T DELIVER OUR COPY!!!! Can you beleive it? We get it every Thursday, but the one Thursday that I'm actually IN the paper we don't get it?!Anyway, luckily the journalist e-mailed me a copy. Struggling to get it on my blog, but look here to see the text... (note that I have figured out how to properly use the 'link' function!) I was also in the Sunday Independant yesterday. The article was about me and 2 other bloggers who had won awards. Thought it was pretty good! Couldn't find it on the internet though...
That's all I can think of right now... Still sad about Sam and all those who don't get lungs in time because of a lack of donors. Hint hint.
Sunday, May 4, 2008
Saturday, May 3, 2008
Good time at Storms and sad news...
Christy: The food next to my steak was potato with sour cream, very yummy... not sure how you eat your potato in the USA!
Our night at Storms River was great. Walked A LOT. Legs VERY sore now. Also had a bit of an accident... my sister accidently locked my car's keys into the boot. And our spare keys are in Joburg. So we paniced a bit, and found one of the park rangers who broke into my car for us... took a pic! And speaking of which, I took hundreds of pics, which I will all post tomorrow or Monday.
We're leaving for Joburg tomorrow morning at 5am... ugh. Please pray that we drive safely...