Wednesday, March 5, 2008

To do list...

I don't have much news today, so I thought I'd put some of my 2-5 am thoughts down... I find myself awake and thinking every night during that time!

Here's a list of things that I want to do in the future, followed by the last time I've done it:

  • sleep over at someone's house... the last time I did that was middle 2006 somewhere. I slept over at a friend's place without my O2 and didn't sleep much. And I felt horrible the next day.
  • sleep over at someone's house without worrying about coughing them awake at night or being self-concious about my 'heavy breathing'... never
  • swim in the sea... the last time I went into the ocean was Jan 2007. I walked in and the waves hit me so hard I couldn't stand still to catch my breath and my boyfriend at the time had to hold onto me to keep me from freaking out/passing out/drowning! Would've been very romantic if not for the fact that I was BLUE and exhausted!
  • visit my grandparents in the Karoo and go to their farm... the last time I was there was in Nov 2006. What would've been a nice break after being on IV's for 3 weeks ended abruptly when we had to come home after one day because I couldn't breathe there.
  • go on a real holiday... I never left PE last year, waiting for THE CALL. My last holiday away from home was in Jan 2006 when I went to Cape Town with friends. It was after that trip that my health started deteriorating fast.
  • RUN... this is one of the biggest ones. I haven't been able to run for about 5 years, and even before that it was only short distances. I actually used to be in my school's athletic team when I was 9/10 years old! I might have forgotten how to do it :-)
  • go for a early morning walk on the beach... my mom and sister always jog along the beachfront early in the morning, but I've never been able to even walk then, as early in the morning was my COUGHING TIME!!! That's when 8/9 hours' worth of packed up mucus had to come out!
  • getting a job with my degree... never
  • survive without electricity... never. I always needed electricity for nebs or O2. Now I don't. My transplant's timing was excellent in light of (no pun intended) Eskom's power cuts!
  • Not having people ask me about my cough and seeming 'normal'... almost never.

That's about it for now, will let you know what the coming nights produce! And will give a Doctor's update on Friday!


kidsworld said...

Maybe you should visit the states since you're already awake on our time!!! I'm glad you'll be able to do all those things. It sure makes me grateful for the simplicity of my own life. It sounds like you'll do great things with life #2!!!

Thanks for the update...I'm always checking in on my little SA "breathless-no-more"!

refreshing in ohio

Katelyn said...

I hope you can run too. :)

Jenny said...

I think you should take a holiday to sleep over while the power is out at someone else's house by the ocean and get up early in the morning and go to the beach for a run and a swim before you put on interview clothes and go to apply for new jobs, and when you're in the interview let them know which week you won't be at work because you'll be visiting your grandparents! :)

Billy said...

What an incredible blog! Saw it on the awards page and have been mesmerized, have read the whole thing! You are an inspiration!
Will be registering on the donor base asap. Good luck with the list.

Anonymous said...

I've got the perfect place Jenny is talkibng about - come visit us in Port St Johns! You can sleep over in the forest, the power is out regularly, we're a short walk over the dune from the beach, and well, then the plan falls flat because I don't see you doing much work here! hahaha. You're welcome anytime! (Oh, and Odin still wakes up sometime between 2 and 5 so then the two of you can have a chat.)