The title is definitely not a description of my day (so far), but I thought it matched Monday's title and it's the name of my favourite fast food special. You get 2 burgers for the price of one, and they're REALLY yummy. Now I just need Freaky Friday then the week's complete!
The coffee with the friend on Monday was very nice. We had so much to catch up on, and after we left the coffee shop we had even more coffee at my house! She's so in love, I'm so envious! But not in a bad way, just miss that feeling! I've been to my friend in hospital twice since the last time I posted. She needs another operation, I feel so sorry for her! At least I know what's wrong with me and my goal is transplant. Not knowing what exactly's wrong with you and having operations and pain and stuff is luckily not something I'm familliar with!
Yesterday was like a shock 'back to reality' for me in the sense that all of a sudden I'm alone again! Holiday's over and my sister is doing summer school. And normally that suits me just fine when I'm feeling crappy and take hours to nebulise and cough and sleep and cough some more and nebulise some more etc. But now I'm feeling just fine, and find myself kind of bored and alone. Trying as hard as I can to find some stuff to do. Luckily I've got physio in an hour's time and then I might visit the hospital again. I've got a lot of stuff to keep me bust mentally (puzzles, books, internet...piano), but I want to go out when I feel good.
Ooo, I almost forgot... I've started doing some exercise again! Not a lot, but I'm working on it! My legs feel a bit weak when I exercise, but they're just lazy, because I'm not even stiff the next day! So I shall push them harder. I've got an eliptical trainer in my room that I exercise on, together with doing some leg exercises and we've got 2.5kg dumbells that I use for my arms (although my left arm is still stiff from the picc line, so I haven't used them recently). The eliptical trainer is really tough, so I can only go for a minute and then I have to stop to catch my breath. At the moment I do 5 minutes, which takes me about 20 minutes to do. The longest I've ever managed without stopping was 3 minutes (without O2), when my lungs were still a lot better. I then used to do about 10/15 mins in total. I'll try and work up to 10 mins for now. If I can do that as often as possible it would be great.
As you can see, I've added a counter to the site (applause for my technological skills please), to that should be interesting... Have to get dressed and clean my room now... bye
1 comment:
Alice, hello! I am Katelyn and I came upon your blogsite through Nate's 'Confessions of a CF Husband' and noticed you mentioned you have Cystic Fibrosis. I too have CF! I plan on becoming a regular reader of your blog and do hope we can keep contact. I hope you have a wonderful and beautiful day where you are.
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